Governor Sindh Dr Ishrat-ul-Ebad Khan said on Wednesday that the province will soon have a law for the prevention of thalassaemia, a genetic disorder that remains incurable for the suffering children. Addressing a ceremony, organised by Make A Wish Foundation at the Governor House, for the children suffering from thalassaemia, cancer and other blood-related diseases, he said that an ordinance would be introduced in the province for the elimination of thalassaemia virus.
“As a first step, all marriage contracts (Nikahnamas) would have a mandatory column showing the health status of the couple with specific reference to the prevalence of the virus,” he said.
The governor appreciated the organisers of the ceremony for fulfilling the wish of the children suffering from terminal diseases with specific reference to the fact that they may be in the last stage of their ailment.
Dr Ishrat expressed his heartfelt sympathies with the parents of these children and said a general realisation was required about their plight and suffering.
In accordance with the wishes of the 11 selected children, the governor presented them with gifts of their choice, besides ensuring that they would also meet the personalities of their choice.
Mohammad Asad (12 years) received a bicycle, Khalid Ikram (seven years), a remote controlled helicopter; Mohammad Mehdi (12 years), a television set; Muzzamil (12 years), an i-pod; Abdul Sattar (four years), a mobile phone; Aniq (eight years), re-chargeable motorcycle; Urooj (14 years) and Muskan Afridi (nine years), Barbie dolls.
Eight-year-old Attiya received a cricket kit and also met her favourite cricketer Moin Khan, while nine-year-old Quratul Ain had a meeting with her favourite TV artiste Hina Dilpazeer and 13-year-old Iqra met with an air-hostess.
On the occasion, Managing Director PIA Capt Junaid Younus announced that Iqra would be provided with an opportunity by the national carrier to fly as an air-hostess from Karachi to any destination of her choice.
The governor appreciated the gesture and said that other organisations must also come forward towards the cause of terminally ill children.
The ceremony was also addressed by President Make A Wish Foundation Dr. Mirza Ishtiaq Baig and its General Secretary Mirza Ikhtiar Baig. Others present on the occasion, included: former chief justice of Supreme Court Said-uz-Zaman Siddiqui, caretaker Minister for Health (Sindh) Dr. Junaid Shah, former cricketers Moin Khan and Salim Younus, and TV artists Zeba Bakhtiar and Hina Dilpazeer.